Housebound and Down

I’m in medical purgatory! I have an ovarian cyst 30cmx20cm, at least that’s what I’m being led to believe. Have you ever got the feeling that you’re not being told the full story?

You see, I’ve had a large ovarian cyst before, the size of a football in fact. 17 years ago my dad took me to the doctor because I looked 6 months pregnant, after being poked and prodded by the doctor she promptly told my dad that she couldn’t tell if I was pregnant or not because I was too tense so she called the hospital to book me in for a ultrasound scan and we headed over there. This resulted in a rather uncomfortable car ride as a 15 year old me tried to convince my stony-faced dad that the only way I could possibly be pregnant was by Immaculate Conception! Well once I had the scan they found the cyst booked me into hospital and within a few days I’d had the operation and was unfortunately minus an ovary.

So you can see why now, five weeks after my initial doctors appointment, I’m a little sceptical as to what’s going on with my innards, because  for some reason  my trial is not nearly close to over. A few weeks ago I had to go sick from work because I’m in too much pain and can’t stand up for much longer than 30 minutes before feeling like my belly is going to drop off. Things are considerably worse now, I can’t even make a cup of tea without needing a very long sit down afterwards, and I’m officially housebound after a recent trip to the shop at the end of my road (barely even 5 minutes away) left me in agony for the rest of the day. Yet I’m still waiting for a call from the hospital to book me in for a CT scan appointment (that only run on Tuesdays and Fridays) and even after that elusive appointment has been attended I still have to wait for my scan results to be discussed amongst ‘the board’ (whatever that means) then be called back to the consultant to discuss my scan results, and fingers crossed that will then lead to me being booked into hospital to have this immense weight removed from me. I’d like to think that would be it, but unfortunately I’ve had the same hope whilst waiting for my ultrasound scan, and my first appointment with the gynaecology consultant and those hopes have been dashed.

My lovely husband is trying his best to convince me that maybe they want to know exactly what it is they’re dealing with before they do anything, but after 5 weeks, 2 scans, a gynaecological examination (yes it IS what you’re thinking it is), and about a dozen blood tests (including the scary CA-125, CA-19-9, and CEA tests) I’d like to think that a medical professional should have some idea by now.

I do appreciate that in this day and age doctors like to be thorough and not leave themselves open to malpractice suits, but surely my quality of life at the moment has got to come into the equation somewhere.



No More Progress!

Apologies for the lack of updates lately, and sincere apologies for the major lack of progress reports. Unfortunately my progress reports have come to an end, at least where my weight loss is concerned.

You see after a rather frustrating 6+ months of watching what I eat, exercising regularly and losing a grand total of 9lbs I made a curious discovery. I was indeed losing body mass and whilst I was losing body fat from my arms and legs my belly didn’t seem to be shifting anything. It was only after I noticed that not only was I not losing any fat from my abdominal area but that it was in fact getting bigger that I started to worry, fearing some dire gastric issue I made an appointment with the doctor.

Now I’m not the biggest fan of doctors, in fact the way I’ve been treated and spoken to over the last couple of years whilst trying to get my fertility issues sorted out, has left me downright dubious of any assistance from the doctors. So I was mightily impressed when the doctor not only listened to me, booked me in for about half a dozen blood tests and a scan, but also asked me what my thoughts were. What impressed me even more was that one of the tests the doctor was sending me for was an ultrasound scan, now when you consider that this is something that I asked a doctor to send me for two years ago to see if my one remaining ovary was cyst free and functioning. Then was quite rudely told they wouldn’t even consider sending me for tests like that until my husband and I had been trying to conceive for at least a year, you can see why I was impressed.

This was short-lived as five days after having my blood tests done I phoned up for my results and was informed that all the results so far had come back normal, except my CA 125 levels were elevated. The only thing I knew about the CA 125 test was that it was the one for Ovarian Cancer, cue me falling to pieces. After being sent home from work, due to me being an emotional wreck, I started to get a bit of perspective on the test results and after chatting to a few people about the results and what they mean, realised that I didn’t really have anything to worry about and the results essentially mean that I have an inflammation of the pelvic area! Now when you consider that my belly is so swollen I look about 5 months pregnant, having a blood test tell me that I have an inflammation is actually quite hilarious! So due to all this we’re leaning more towards the idea that I have another ovarian cyst, which is quite an unpleasant prospect as I had one removed when I was 15 and they took one of my ovaries with it.

Also in the few days after going to the doctors I began to realise I had a lot of ailments over the last few months and they were all related.  I’ve been getting a severe pain in my upper thighs and under my belly, I had been putting it down to my gym workouts (which I have now had to give up) then realised it was the extra weight of my stomach putting a strain on the underneath. I’ve been getting quite short of breath, which I put down to just being unhealthy (which was another reason for the gym visits) but is actually from the growth in my abdominal area squashing my lungs. I’ve also been getting some sharp and unpleasant pains in my shoulder and heel for quite some months, which I put down to straining a muscle or something and it just not getting much of a chance to heal itself. This could in fact be down to the ‘growth’ pushing on or irritating certain nerves. Add in the loss of appetite, nausea, and backache and I’m a bundle of laughs really.

It’s now been nearly three weeks since my initial doctors appointment, I’m still waiting for some more results from blood tests I had done after finding out my CA 125 levels were raised, I have a scan appointment for Friday 8th June, and physically things have gone rapidly downhill for me. I wake up every morning nauseous and with a backache, I can’t stand up for much longer than 30 minutes before getting severe pains in my underbelly, and if I sit down for too long I get a severe pain in my shoulder. So on that basis I’ve unfortunately had to take some time off from work until I can get this all sorted, and now spend my days pottering about the house counting the days down till I have my scan and we figure out for definite whats going on with my little growth.

So that’s why there’s no more weight loss progress reports, and I’ll just be doing my knitting and sewing projects in their own posts.

Fingers crossed for friday!